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Community & Business

25 June, 2024

Gift gives new hope for moyamoya research

AN anonymous $45,800 donation has been gifted to Moyamoya Australia, allowing the locally based charity to help medical professionals develop technology and treatments to identify moyamoya disease.


Moyamoya Australia founder Nicola Baker with Professor Marcus Stoodley, who will be using an anonymous $45,800 gift to research the rare disease.
Moyamoya Australia founder Nicola Baker with Professor Marcus Stoodley, who will be using an anonymous $45,800 gift to research the rare disease.

The grant will help Professor Marcus Stoodley and his team create technology to identify the gene variants of Australian patients with moyamoya disease, allowing early detection and possible prevention.

Ravenshoe mum and founder of Moyamoya Australia Nicola Baker said she was excited to see a large sum of money going into an important cause. 

 “When our 11-month-old son had his first stroke, we didn’t know what caused it, and the subsequent diagnosis of moyamoya disease has left us wondering how Jed has this disease,” she said.

“It would be wonderful if we could find a genetic link between our Australian patients of moyamoya disease and are very proud to have been able to secure a grant to allow that cataloguing to commence.

 “We do recognise that many of our patients have down syndrome, but are hopeful that there will be another factor to monitor, and we will be world leading in this research.”

Since its inception, Moyamoya Australia has continued to work to raise the profile of this disease, ensure that our patients are diagnosed early, and receive the best outcomes possible.

Along with this gift, Moyamoya Australia has contributed a further $40,000, making its investment in research and training just shy of $100,000.

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